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Living with BRCA 2's avatar

I come from a large and healthy, long living family. I assumed I had inherited the healthy genes that ran through us. But after breast cancer and ovarian cancer I tested BRCA 2 positive. And one of my three daughters did too. All of my 5 siblings tested negative. It won’t change anything, but it’s hard not to ask “why me”? Especially, why my daughter? The truth is, it has changed me. I am closer to God and am more sensitive to others. A better listener, a first time writer. I don’t say why me very often out loud, for it is unanswerable, at least on this earth. Does it matter? Does it only matter what I make of it? Does it only matter what I learn, what I share, what I give?

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Kacie M.'s avatar

Such good questions.

I don’t think a child is taken to teach a lesson to the mother. I resonate with your instinctive shudder at that one.

I feel like the loss of a child calls back to the biblical narrative of the fall, the loss of paradise. It’s broken, so broken, we were not made for this death and loss, all creation groans as the earth experiences the twisting that comes from our tragic rift from the one who weaves the fabric of the universe together. We feel the weight of it all, not just in temptation to sin but in sickness, death, war, the twisting of our very dna in deformity. It’s seeing those things that makes me long for a promised redemption, renewal, restoration.

And it makes me appreciate that in this story, He is not far off, He enters in, He comes to us, He weeps with us at death (even when he was about to undo it), and He is in the process of redemption.

I think as we really see the world in the light of that story, we are the people who mourn and weep the most (it shouldn’t be this way!! We can’t settle for this broken reality!), and also hold the most joy (it will be redeemed! Death will be no more. We will be resurrected and live again, whole). Is it possible? I hope so.

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